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Disability Bitch
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Disability Bitch wants a first class NHS
17th March 2011
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With so many other things to talk about, I worry that some important news stories affecting the lives of disabled people will slip under the radar.
There are two such stories in recent days: firstly, the Welfare Reform Bill in parliament and is inching closer to becoming law; also, the British Medical Association - its first in twenty years - because members are worried about government plans to reform the NHS.
Now, this last thing is intriguing because the BMA is, basically, a bunch of GPs, and the main premise of the proposed NHS reforms is to give those GPs more control over health finances, and cut some bureaucrats out of the middle.
I'm over-simplifying, obviously; the detail of what's being proposed is rather complicated - I'm still peeling my exploded brain off the wall just trying to understand it. Nevertheless, readers, I can't help feeling that somewhere along the line we Disableds have been overlooked in all this.
I'm sure I've mentioned before that I HATE THE NHS, except for the part where I love it because it's saved my little crippled life a few times. I don't mean to cast aspersions but it does get kinda boring when you have a chronic health condition and have to suffer a five months wait for an appointment with a specialist because you're not at death's door.
Frankly, I think the doctors should remember who keeps them in business. Yup, without us, the long term medically abnormal and older people, no one employed in the medical professions would have a job.
Readers, I think it's time they thanked us for it.
They should show their gratitude by putting us in charge of the health service. Well, more specifically, me.
There are simple mundane changes I would make: y'know, hiring more staff to reduce waiting lists, improving cleanliness, and forcing everyone with medical training to smile and say Please and Thank You when dealing with their patients ... or should we be saying 'customers now?
Perhaps I should also create some training modules like: 'Social Skills in Practice' and 'Basic Politeness'.
I could introduce a special ego-shattering 'Learn That You Are Not God' course for any doctor wishing to progress to consultant level or beyond, especially neurologists.
Your ideas for training modules welcome . Thank you.
I am not a monster. I understand that doctors sometimes have emergencies to deal with and we'll have no choice but to wait our turn. I simply feel that we should be treated well while we are there: no more sticky plastic or dubiously-upholstered chairs for us, when I run the NHS the chronically sick and disabled will wait blissfully on velvet-covered chaise longues, tended to by personal chefs and highly trained masseuses because we're there so often and need to have it as a kind of home-from-home. Yes, realistic stuff, basically.
These are just a few of my ideas, readers, and I'm sure you can see their benefits. Think about it: who would you rather have running the NHS? Politicians? Bureaucrats? Doctors? Or me, Disability Bitch? C'mon, the answer's obvious.
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Comments
It would be nice if the new shiny NHS was to give decent wheelchairs. I got a new one in the summer and its a design disaster, cheaply build and already falling apart
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What about some properly integrated services for those of us with chronic problems? One of the things that drives me nuts is the constantly being referred on which can sometimes seem like a continuous loop.
For example, a single place to get one's mobility assessed, blue badge, freedom pass issued, then guidance on a suitable chair, scooter, car to meet one's needs. Yes there's a shed load of information on the Internet but it can often confuse more than it helps.
When funds are limited, I'd like to see more collaboration between the medical teams, the community teams and the equipment suppliers. All of them, of course, putting the disabled person at the heart of what they do. Funny I seem to recall seeing that phrase in a number of strategy documents. Not sure if I will survive long enough to see it in reality.
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"... no more sticky plastic or dubiously-upholstered chairs for us, when I run the NHS the chronically sick and disabled will wait blissfully on velvet-covered chaise longues ... "
sorry DB, but you've got a hope in h*ll ... the NHS management have just confiscated my comfy velour sofa in the Health Centre because the surface is not capable of being wiped clean ... the fact that the cleaners never wipe the plastic covered seating is beside the point, as is the fact that all my clients loved the velour covered sofa
so now I'll have to look for a suitable donor for the sofa
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DB, when you're in charge of the NHS will you tell them to get rid of all those horrible whitish bath aids thingys that although just new look as if someone has peed on them...
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Oh, don't forget to train them not to assume that you are making up or exaggerating what you are going through. Also not to assume anything just because a 20 minute EEG has been interepted as "normal".
Could you do that for me Disability Bitch? There's some chocolate in it for you. Lily O'Brien and Thorntons. :D *waves chocolate in the air*
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If you have chronic conditions relating to a disability the target driven NHS ignores you as you are blamed for the conditions they cannot cure If you look alright & disability not recognised you are denied appropriate and urgent access . I am having to go abroad for surgery and fund my own assistance even though have a Certificate of Entitlement DLA Appeals. My Mother with severe cognitive dysfunction multi infart dementia is also fleeced of her assets .Have we a fair Government that operates like this fleecing the most vulnerable ?
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