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60seconds Claudia-Liza: Living with Tourette's

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Claudia-Liza Armah Claudia-Liza Armah | 12:30 UK time, Monday, 12 December 2011

Imagine a life where almost every moment of the day you swore, had spasms or tics, constantly shouted out at inappropriate times and you had no control over it.

Well that's what life is like for Ruth Ojadi. She suffers from an acute form of , a neurological condition that makes people do and say involuntary things. It affects about 300,000 people in the UK, there's no cure and it's pretty much misunderstood. Only 10% of sufferers swear and act inappropriately. This severe and rare form is called coprolalia.

In fact, 's stint in the Big Brother house back in 2006 was probably the first time many people were made aware of the condition and how it affects sufferers' lives.

Tonight, in Tourette's: I Swear I Can Sing, ³ÉÈËÂÛ̳ Three follows Ruth, a talented singer, as she tries to rebuild her life after being diagnosed with the coprolalia form of Tourette's three years ago.

Ruth has dreams of getting back on the stage and gives us an insight into what everyday life is like, revealing her frustrations, fears and hopes, and how she is coming to terms with living with Tourette's Syndrome.

In this clip, you'll see how simple everyday activities like shopping can be a struggle for Ruth, but when she starts to sing all signs of Tourette's disappear:

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So what exactly is Tourette's Syndrome?

The truth is doctors are still puzzled by this condition, and don't know its precise cause.

But this is what they've been able to find out:

- It's a , which causes involuntary tics, sounds and movements
- At its worst, twitches can be severe and frequent, and outbursts of swearing are constant
- No two people have the same symptoms
- For many, it starts in childhood and continues on to adulthood
- A Tourette's sufferer might be able to suppress it for a while but will eventually have to let out the tics
- Doctors believe the condition might be genetic
- It's linked to other behavioural conditions such as Obsessive Compulsive Disorder (OCD) and Attention Deficit Disorder (ADD).

What can be done to treat Tourette's?

There is no cure or remedy for Tourette's, but with more and more research into the condition, there have been some developments in reducing its effects on people:

- Medication can be given in severe cases to reduce any tics or sudden moves, but it can come with unpleasant side effects
- Some sufferers say taking part in relaxation exercises, like yoga, can help in the short term
- Psychotherapy and behavioural therapy have also been adopted as a way of controlling the symptoms
- New treatments are being developed and tested all the time.

If you want to find out more about the condition, or if you're a sufferer in need of support, check out these websites for help and advice:

- ³ÉÈËÂÛ̳ Health - Tourette Syndrome
-
-

And we'd love to hear your thoughts on Ruth and the documentary.

Journalist Claudia-Liza Armah presents the 60seconds news bulletins on ³ÉÈËÂÛ̳ Three

Comments

  • Comment number 1.

    On last season's American Idol, there was a contestant called James Durbin who has both Tourette's Syndrome and Asperger Syndrome. I've provided a link below to one of his interviews that he did. It's worth watching!

  • Comment number 2.

    Ruth is a beautiful, intelligent and inspirational young woman. I watched in awe for most of the programme at the charisma she exudes whilst she goes about her life. I wish her all the success she deserves for her singing; and I hope that the programme helps to, as Ruth said, change the world one tic at a time.

  • Comment number 3.

    As a parent of a child with Tourette's I would like to compliment the ³ÉÈËÂÛ̳ on one of the best documentaries on Tourette's syndrome I have watched. I liked the way the camera was used to portray the reactions of members of the public. As more people become educated about the condition through accurate programs such as this we can hope that the wider public can gain more of an understanding and realise that beyond the tics there is an intelligent and caring person.

    I wish Ruth every success in the future, she is a remarkable person and a beautiful singer.

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